Peter Ashley was told that he had dementia seven years ago, after enduring three years of treatment for a series of wrongly diagnosed conditions that culminated in electric shock therapy.

The retired company director from Warrington recalls very well the day he and his wife were given the diagnosis of Lewy bodies dementia, a rarer form of the disease with characteristics of Parkinson’s.

“We literally fell apart. It was the summer, and I remember we sat on the patio for days just crying — and we are not really that sort of couple. I just did not know what it meant for my retirement plans, our plans for more holidays and, most importantly, what it would mean for my three daughters and my wife,” he said.

However Mr Ashley, 71, has been fortunate, receiving excellent medical and psychiatric treatment, and he continues to live a fulfilling life. Fortunately, a neighbour held a senior post in the local mental health care trust, so he was given prompt and up-to-date advice on treatment. Unusually for early-stage dementia, he was approved for drug therapy, although only on the basis of a trial. He takes Exelon, which helps to retain cognitive function.

“I also adopted a ‘use it or lose it’ strategy and began to lecture on dementia and sat on the NICE Guideline Development Group, which came up with recommendations for treatment. I have very bad short-term memory problems and I cannot get around very well. My spatial awareness is very poor. But I am convinced that the drugs have been a key element in helping me to retain a great deal of my mental capability,” he said.

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